Welcome to the CFCF Web Site
Cystic Fibrosis is one of the UK's most common, life-limiting, inherited diseases.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
Around 1 in 25 of us carry the gene and approximately 1 in every 2,500 people suffer from the disease. This can vary slightly in different populations.
Improvements in care and treatment mean that more and more babies born with CF will become adults. However, life expectancy is shortened.
The Cystic Fibrosis Comfort Fund is a small Bristol based charity, independent of the Cystic Fibrosis Trust, which aims to help those who suffer from Cystic Fibrosis in their daily lives and enhance their quality of life.
It was founded in 1991 by a small group of people from the Bristol Children’s Hospital following a bequest by a grandfather. In his will he stipulated the money should be used to benefit patients with Cystic Fibrosis to help them manage their own lives.
There were originally two Trustees from the Children’s Hospital, a senior nurse and a clinical nurse specialist, two parents, and a lecturer in physiotherapy. The Fund grew from there and it became a registered charity in 1993.